Vanishing White Matter Disease

Today on Hempresent Vivian is Joined by Jayda Suttie. Jayda who has terminal illness had her dream come true when she met popular daytime television host and comedian Ellen DeGeneres before an appearance at Rogers Arena in Vancouver. Eleven-year-old Jayda Suttie, who has a rare genetic disease called Vanishing White Matter, only learned that she would be meeting her hero about an hour before her show.

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In 2016, Jayda bumped heads with another student during gym class and was rushed to the hospital where she went into a coma. She awoke three days later to learn that doctors discovered she had Leukodystrophy, which is also known as vanishing white matter disease, or V.W.M. It is estimated that only about 200 people worldwide have the disease, which is part of the reason why Jayda was so eager to meet DeGeneres. Jayda now hopes to raise awareness about Leukodystrophy.